The conference is fully subscribed, but you are welcome to follow our live stream on facebook @SignoSSK. The streaming will start at 10:45 1st of November.
Signo Conference 2017 is at two day conference focused on CHARGE syndrome. The conference is for professionals, parents and other network around people with CHARGE syndrome. Registration form for the conference can be found at the bottom of this page.
In connection with the conference being held we have a gathering for families who have a family member with CHARGE syndrome.
The gathering for families is now fully booked, but you can read more information about it here (norwegian): http://signo.kursadmin.itum.com/Course/59597
The conference is approved by The Norwegian Psychological Association (NPF) and The Norwegian Medical Association (NMA) in five specialties
NPF:
Accredited 11 hours maintenance activity
NMA (five specialties):
Psychiatry: accredited 11 hours for specialists' continuing education.
Childhood illnesses: accredited 11 hours for specialists' continuing education.
Otorhinolaryngology: accredited 11 hours for specialists' continuing education.
General medicine: accredited 11 optional course credits for continuing education.
Neurology: accredited 11 hours as optional course for physicians in specialization and specialists' continuing education.
Price
NOK 1100,-. The price includes light lunch both days. There is no course fee for participants from families receiving services from Signo School and Resource Center.
Accommodation
A single room with breakfast included can be booked at reduced price (NOK 990) at Quality Hotel Klubben in Tønsberg. Course participants who want a room must book and pay for themselves by calling 33 35 97 00 or write an e-mail to anita.nordby@choice.no. Reference number: 72551
Transportation
Signo Resource Centre arranges transportation from Quality Hotel Klubben (adress: Nedre Langgate 49, Tønsberg) on Wednesday and Thursday morning and back to Tønsberg both days after the course. Course participants who do not live at the hotel can also take advantage of the transportation.
The price for this transportation is NOK 100 (one way) or NOK 400 (both ways both two days). Check the section for transport in the registration form and the cost will be charged together with the course fee.
Conference program:
Signo Conference 2017: CHARGE syndrome
Location: Signo School and Resource Centre, Andebu, Norway
Date: 1st and 2nd of November 2017
All lectures will be in English. Interpreting into Norwegian Sign Language.
Wednesday 1st of November
08.30-09.30: Registration
09.30-09.45: Welcome by head of Signo
09.45-10.30: Cognitive Challenges in CHARGE Syndrome: Another piece in the puzzle
Anni Lise Ellefsen, Senior Advisor and Lynn Skei, Clinical Neuropsychologist, Signo Resource Centre
10.45-11.30: Change emotions with emotions: self-regulation of emotion in CHARGE Syndrome
Jude Nicholas, Clinical Neuropsychologist,
Haukeland University Hospital and Statped Vest center for special needs education, Norway
11.30-12.30: Lunch
12.30- 15.30: CHARGE Syndrome After 34 Years: Developmental and Educational Aspects
David Brown, Educational Specialist, California Deaf-Blind Services, USA
15.30- 16.00: Coffee break
16.00-17.00: Poster presentations by Shanti Madhavan-Brown, Anna Weatherly, Shelby Muhn and Lily Slaven; students from Central Michigan University:
- The development of social play in children with CHARGE
- Degrees of Severity in CHARGE Syndrome
- Anxiety in CHARGE Syndrome
- Restorative Environments for Children with CHARGE
- Post traumatic growth in parents of children with CHARGE Syndrome
- Headaches in CHARGE Syndrome
Thursday 2nd of November
09.00-09.10: Welcome to the second day of the conference
09.10- 10.00: Medical diagnostic information and health challenges in CHARGE syndrome
David K. Bergsaker, Senior Medical Officer/Consultant Pediatrician
Information about Frambu and CHARGE syndrome
Marianne Nordstrøm, PhD, Clinical Dietician, Frambu Centre for Rare Disorders
10.15-11.30: Facilitating effective learning and learning environment for children with CHARGE
Leif Olsen Øyen, Pre Headmaster at Enggrav School and Kindergarten,
Lynn Skei, Clinical Neuropsychologist, and Anni Lise Ellefsen, Senior Advisor Signo Resource Centre
11.30-12.30: Lunch
12.30- 15.15: Issues in raising a child with CHARGE syndrome
- Learning how to parent
- Dealing with the medical profession
- Dealing with the schools
- Developing communication and language
- Coping with behaviour
- Facilitating social-emotional development
Timothy S. Hartshorne, Ph.D., Department of Psychology, Central Michigan University, USA
15.15- 15.30: Coffee break
15.30-16.15: Ending of the Conference. Concert with Maximus in Tomaskirken.
With reservation for changes in the program